Saturday 31 July 2010

Cosmic Spiral

"Cosmic Spiral" designed by Alan Davie
As a child, in Lossiemouth, I remember my father getting us up out of bed to gaze in wonder at the Milky Way, with a comet clearly visible, and on another occasion to see the Northern Lights.

I studied science to university level, but somehow no scientific explanation of those phenomena ever got near touching the meaning-filled moments, shivering in the back garden aged 6.

We can try and get at “truth and meaning” in life using logos or reason, but we can also get close to it using myth and symbol; one the “rational” the other perhaps the “artistic” route.

At this time of year the image of the star is full of meaning and Alan Davie’s tapestry, designed in his late 80s and made so beautifully by the Dovecot Studios, saves us a thousand words in the search for meaning.
For many older people, the search for meaning, the need to make sense of life is very strong, but can be hampered if the emphasis is all on words and explanation, especially if dementia is involved.
Amongst other things FiOP aims to explore the way creative arts can help access meaning when words don’t quite hit the spot.

Mary Moffett

*The above tapestry is from an exhibition at The Dovecot Studios, Edinburgh during Aug/Sep 09.
(websites:  www.dovecotstudios.com and www.gimpelfils.com
In 2004 Alan Davie was awarded an Honorary Fellowship by Edinburgh College of Art which he formally accepted this summer (www.eca.ac.uk)




An example of weaving in process– Dovecot Studios

God the Weaver  by Alfred Wooler

My life is but a weaving between my God and me;
I may choose the colours, He knows what they should be;

For He can view the pattern upon the upper side,
While I can see it only on this the underside.

Sometimes He weaveth sorrow, which seemeth strange to me;
But I will trust His judgment, and work on faithfully.

‘Tis He who fills the shuttle, He knows just what is best,
So I shall weave in earnest and leave with Him the rest.

At last, when life is ended, with Him I shall abide,
Then I may view the pattern upon the upper side.

Then I shall know the reason why pain, with joy entwined,
Was woven in the fabric of life that God designed.


The reverse of the Cosmic Spiral tapestry
(barely messy enough to suit the needs of the poem!)


Balconies, terraces and roof gardens: a request for help from Professor Mary Marshall

If we want people with dementia to remain near where they have always lived, or near to their relatives, we are going to have to get used to care homes in towns and cities which are more than singe storey. Already the majority have two floors and most of them do not have balconies, terraces or roof gardens.

Quite often people with dementia are on the first floor rather than the ground floor, for reasons that are hard to understand given that they need to be outside as often as the rest of us but are less likely to be able to use lifts and stairs on their own. I expect it is about concerns that they might walk away because the gardens are not properly designed.

I am writing a book about balconies, terraces and roof gardens for the Dementia Services Development Centre in Stirling, in the hope that we can promote easy to access, outside space above the ground floor. Like most people, the thought of having dementia and never feeling the fresh air makes me feel really anxious.

The book will present the arguments for outside space above the ground floor – health as well as human rights – and will go on to show how it should be provided ,with lots of photographs of examples. I would really welcome views, experiences and suggestions of places (good and bad) which I should visit.
If you would like me to send you a feedback form for specific balconies, please let me know.



These are examples of what can be achieved to give people the opportunity to enjoy a safe outdoor space that is not a traditional garden.
Reproduced with kind permission
Pozzoni LLP, Chartered Architects
and Designers and the CLS group

Please contact: mary@marymarshall7.wanadoo.co.uk
if you have any questions, feedback or ideas about balconies.

Faith in Older People – Summer 09 newsletter

Friday 30 July 2010

My Garden

I  have a small urban garden right in the centre of the City.  It is a wonderful south facing tranquil site which I created myself (it once won a prize in a city centre garden competition).  But more than that it represents a space into where I can step out, work, entertain and talk to my plants, relax and restore my soul when the need arises.

This isn’t an especially low maintenance garden either, and I think therein lies some of its value to me.  It demands upkeep and the spin-off in terms of being outdoors and staying healthy is unquantifiable.  I would  be forced to recognise my real age, (which I mainly ignore) and either find less appealing means of  maintaining well-being, or possibly succumb to low flying age-related maladies:  (As it is I deal with low flying aphids and the like!).

My aim is to continue to live here, independently, cultivate my garden, ignore the vagaries of climate and contribute to the greening of Edinburgh.

In fact Edinburgh is now  has a greening policy,  providing open spaces for small allotments and gardens in public areas and back greens.  This would seem to open up opportunities for others to work outdoors and help maintain health, even where they don’t have individual gardens.

Anja Amsel

The Rev Malcolm Goldsmith

Each of us holds a special memory that epitomises Malcolm.  We would like to share with you a paragraph from his latest book which sums up the vision and compassion which became his driving force to set up Faith in Older People (FiOP).

“When I visit a care home and see 10-20 people sitting in a room … what do I see?  Certainly I see frail, vulnerable and elderly men and women, but I also see people who have endured a great deal, who have created much, who have  loved and been loved.  People whose lives have created the society in which I live, and for which I am grateful.  These are the people who have maintained the fabric of this world, and perhaps for most of them, their daily work has been their prayer.

And what do I wish for these men and women?
My wish is that they can live their final days with a sense of dignity and honour, that they can find some form of meaningful relationship with others and with their own inner being.
My wish is that they may discover and maintain an inner peace and a sense of wonder, and that those who care for them engage with them in such a way that lives are transformed and that even the simplest and most mundane task can be, using religious language, “sacramental” although they do not need the religious language.

Spirituality is as relevant for the non-religious as it is for the religious because it is about the fundamental meaning of being human."

Drawing on his considerable skills of persuasion and determination Malcolm drew together a small group to form Faith in Older People.   He recognised and appreciated the gifts and experience of old age, but also understood the losses that occur and how easy it is for congregations to lose sight of older members when they are no longer able to participate.

His vision, patience and inspiration has helped to establish what is still a young organisation, but one which is growing in influence by providing innovative methods of encouraging and supporting people to value the importance of spiritual lives of older people in their care; both in a practical way with other congregations and into the wider sphere of health and social care.

Our small team is committed to the work to make sure that the vision of our Founder, Malcolm Goldsmith, is made a reality.  For many older people the end of their lives is spent in a ‘strange land’ be it as a result of dementia or the need for care away from familiar surroundings, so the challenge to FiOP is to “help people discover how to live their lives with creativity and hope”.

Our definition of spiritual care is “what gives meaning and purpose to everyday lives” and lifts the spirit.  Malcolm strongly believed that FiOP should be involved with those of faith and those with none and that the work should be open and embracing. 

We work primarily with those who provide care, whether paid or unpaid, be they health or social care staff, hospital chaplains, volunteers or clergy.

To do this we offer a range of courses; hold conferences highlighting ideas and new work; organise debates and lectures to challenge thinking; provide mentoring and support and develop ways of worshipping with people who have dementia.  We hope you will continue to support FiOP in memory of Malcolm.

Old Age: Wasteland or Harvest Field - Inverness

Building on a very successful conference in October 2008 on the theme of Old Age: Wasteland or Harvest Field Faith in Older People responded to requests to hold a conference in Inverness.

This enabled people from the more northerly parts Scotland to participate in discussion and met our aim of working on a wider geographical basis.
Even though the conference was held in May the harvest theme seemed to resonate with our participants!  We were delighted to welcome over 50 delegates to the very pleasant conference venue, the Bishop’s Palace which is part of the Eden Court developments.  Financial support from ACTS and the Scottish Episcopal Church in Society Committee was very much appreciated.

Our morning speaker Gaynor Hammond talked about the use of memory boxes (see also next page) and the importance of these during ‘transitions’.  She was speaking particularly about movement into residential care but I felt that she could just as well have spoken about any kind of transition.


Professor John Starr looked at the demographics of individual ageing in Scotland in the context of economic, health and social policy. He gave us a very engaging talk and helped us understand the wider context in which we experience ageing.

We divided into group work sessions which covered a variety of topics including the spiritual tasks of ageing, worship and dementia and voicing the spiritual.   The expected rain didn’t materialise so that we could get to the different “break out” venues without getting soaked.
During the day we talked a lot about the importance of relationships and how relationships are made and sustained through story telling and listening.  It is our relationships with each other that help us understand ourselves and our own ageing.  Our gift to each other is to offer ourselves in friendship and to faithfully try to understand and celebrate ageing.
The delegates all felt by the finish of the conference that this should be the beginning of something important rather than the end of the conference.   We hope that we can build on this feeling and aspiration and take our learning from the conference back into our faith communities, building on a very successful and encouraging day. We will be setting up some further North of Scotland events which will help to do this.

Dr Harriet Mowat


INVERNESS CONFERENCE– Memory Box – Gaynor Hammond

Gaynor Hammond, Faith in Elderly People, Leeds, spoke enthusiastically and inspirationally about the benefits of Memory Boxes.  These boxes can contain meaningful memory joggers, personal items and photos which bring to life the memories and experiences of older people and enable those caring for them to have a much stronger insight into why things are important to them.  This reinforces individuality and identity and provides real opportunities for carers to develop conversations and make contact.   To illustrate the importance of identity Gaynor produced her own memory box which contained her nurse’s uniform because that had been a really important part of her life.  This prompted the following illustration:

Gaynor had visited the home of a fairly unresponsive older woman with dementia who had been a nurse.  One day the Community Nurse visited, wearing her uniform.  There was instant recognition of the ‘nursing sister’ and her husband was commanded to produce tea using the best china cups.  The ability to identify with the nurse was strongly embedded and enabled recognition and communication however brief.
another illustration Gaynor offered:

The staff in a care home were finding one of the older male residents very challenging.  He seemed to be very resistant to help and was swearing a lot.  They were surprised at this given that he was a retired minister.  However, using this information Gaynor was able to open a discussion with him about his faith and the kind of routine he was used to having before he entered the home.  It transpired that he was accustomed to saying a prayer and reading his Bible first thing in the morning and that he had not been doing this since he had moved into the home.  When Gaynor did this with him he became a lot calmer and willing to co-operate.

The discussion with the staff on the importance of this routine for him brought up the issue of religion and staff involvement.  Several staff ‘didn’t do religion’ as they had no personal belief.  Gaynor challenged this. They would be happy to read the newspaper to him but did they believe everything they read in it?  The critical factor was that by enabling this resident to continue with his daily faith practice he became calmer and mutual benefit was derived.

By the time Gaynor had finished talking we all wanted to create our own memory boxes. 

Professor John Starr provided a stimulating PowerPoint presentation entitled
“Your Very Good Health”.

In 1948, when the NHS was founded, a government information film, “Your very good health”, described the future in glowing terms.  Sixty years on and the health landscape has changed far beyond the imagination.  Life expectancy has increased substantially and, whilst up to the 1960s this was largely due to reductions in child and early adult mortality, the main reason for people living longer over the last thirty years is the new phenomenon of mass survival beyond the age of seventy. But to what extent are people able to enjoy a ‘very good health’ once they pass three score and ten?

There are many measures of health – mortality, disease, frailty, disability, self perceived, socially constructed – that relate to a greater or lesser degree to the wish to be included, remain independent, have more choice and enjoy life. The increase in life expectancy brings more opportunities, but it also brings an increase in absolute terms in the number of years a person is likely to live with disability. UK statistics indicate that there is a shift in such disability being largely attributable to physical problems towards a greater proportion being caused by problems with mental health. Moreover, despite older people being generally better off materially, not only in absolute terms but also relative to the rest of society, there is no evidence for them being more satisfied with their lives, and their mental stress has increased over recent years.

These changes are likely to have a major impact on carers.

The substantial loss of care home places over the last decade has not been matched by an equivalent increase in social service provided community care. Some of this ‘care gap’ has been filled by increases in care provided in acute hospitals, but the rest, around 6 million hours per year, is either unmet or has fallen to informal carers. It is estimated that informal, unpaid carers provide around £7.6 billion of care per year, which compares with the £.8 billion allocated to health boards in Scotland annually, equivalent to £1,500 per person in Scotland. The support of carers presents a major challenge in the years ahead.

There were three participative workshops

The Spiritual Tasks of Ageing with Dr Harriet Mowat

Voicing the Spiritual with the Rev Jim Simpson

Worshipping with People with Dementia which was facilitated by Mary Moffett & Rev Sue Kirkbride


“The workshop about Worship gave me lots of inspiration and ideas to use in my own parish.”


Hymn and Poem on Nature


This is My Father's World  by Maltbie D. Babcock

The earth is the Lord's and the fullness thereof . . . Psalm 24:1
This is my Father's world:
And to my listening ears
All nature sing and 'round me rings
The music of the spheres
This is my Father's world:
I rest me in the thought
Of rocks and trees, of skies and seas
His hand the wonders wrought.
This is my Father's world:
The birds their carols raise,
The morning light, the lily white,
Declare their Maker's praise
This is my Father's world:
He shines in all that's fair:
In the rustling grass
I hear Him pass
He speaks to me every where
This is my Father's world:
O let me ne'er forget
That though the wrong seems oft so strong
God is the ruler yet.
This is my Father's world:
The Battle is not done;
Jesus who died shall be satisfied
And earth and heaven be one.

Plant a Garden by Edgar A. Guest

If your purse no longer bulges
and you've lost your golden treasure,
If times you think you're lonely
and have hungry grown for pleasure,
Don't sit by your hearth and grumble,
don't let mind and spirit harden.
If it's thrills of joy you wish for
get to work and plant a garden!
If it's drama that you sigh for,
plant a garden and you'll get it
You will know the thrill of battle
fighting foes that will beset it
If you long for entertainment and
for pageantry most glowing,
Plant a garden and this summer spend
your time with green things growing.
If it's comradeship you sight for,
learn the fellowship of daisies.
You will come to know your neighbor
by the blossoms that he raises;
If you'd get away form boredom
and find new delights to look for,
Learn the joy of budding pansies
which you've kept a special nook for.
If you ever think of dying
and you fear to wake tomorrow
Plant a garden! It will cure you
of your melancholy sorrow
Once you've learned to know peonies,
petunias, and roses,
You will find every morning
some new happiness discloses

Harvest






From 3rd Age To 4th Age The Breakpoint

Recently I should have been running a day's training on this very topic with my colleague Penny Grieve in St Andrew's.     I should have been shipped in as "Exhibit A", but alas I was not there.   Let me explain, if 1st age is childhood, 2nd age adulthood, 3rd age active retirement, then 4th age is when one finds oneself unavoidably in need of care.

For some this movement from 3rd to 4th may happen slowly, be well planned, regrettable perhaps, but accepted.  For others it may happen unexpectedly, in a trice, through a fall, stroke or heart attack.
Those who die suddenly or young may miss 4th age altogether, and some insist that they will never grow old and that planning for 4th age is "negative thinking" and not for them!  Family, neighbours and Church community all watch with concern when people on the brink of 4th age steadfastly deny any possibility of it, and I know GPs and social carers who realize that some people will just have to "come to a crisis" as no amount of talking will "make them see sense". This crisis may well involve a broken bone or broken health of the older person, or their exhausted carers.

Yet many professionals are not overly critical of an older person's refusal to see what others think is self evident; they know through experience that the gifts of determination, optimism and fierce independence always have their blind side, but are the qualities that keep people going and enjoying life while they can. Most-times "living dangerously" at home feels better than "a risk-assessed life in a care home"! I think we can all sympathise.

In January I catapulted myself temporarily into 4th age status breaking through both tibia and fibia bones above the right ankle. There then ensued the predictable and unavoidable progression of ambulance, hospital, temporary cast, little sleep, operation, 2nd temp cast, less sleep, 5 days in hospital, solid cast and them finally home to hopping on an arthritic left knee with a zimmer to support me! To add insult to injury, our house has precipitous stairs, and no loo on the kitchen level, so I stayed upstairs until I had worked out how to get safely up and down.

I described myself as being on 8 weeks work placement, doing Module 2, 4th Age Empathy Studies, use of zimmer and crutches.  What have I learned?  Well firstly how kind and thoughtful people are in a crisis. The church has excelled in cards, flowers and prayers and messages of support, and my family and neighbours have been wonderful, I am truly grateful. Luckily we live in a large house with big windows and I have not developed cabin fever, but how would I have coped if all this had been permanent? What if this break had meant the beginning of not walking unaided, or not driving, or not going outside on my own again?

Everyone has supported me magnificently in my temporary distress, but how good are we all at the long haul, when someone moves to 4th age permanently? What sort of help and support is it possible and helpful to offer? These are the questions I wrestle with much of the time in my work, and the answers are different for each person.

Some accept practical help, or share the pain with bitter humour, others need a listening ear to hear the story for the realisation to unfold; for others their faith in God's love and the promise of Jesus' presence with them no matter what their trials keeps them whole; almost all welcome the visits of professionals or caring faithful friends and family as they come to terms with their change in status.

Secondly as “a patient” with a broken bone, learning to “wait patiently” (pun intended) becomes a vital skill.  Waiting at the outpatient orthopaedic department for stitches out, X-ray, new plaster and meeting with consultant takes a whole morning.  At home, almost any of the things one expects to be able to do for one’s self - shop, get food or a drink, answer phones, put away laundry, etc., are all either impossible unaided, or take time and have to wait until someone else is able or perceives it needs doing!

From being able to “do things” one becomes humbled into accepting that things will be done by others.  The task for the patient is to give up power with good grace, to become a leaf on the water and “go with the flow”.   This may be relatively easy to start with, but the novelty soon fades and it becomes a difficult discipline.   “You must be very frustrated” friends say.

It is connected with how we see ourselves –if it is through others eyes i.e. as useful, or by what we get done, then giving up the status of “useful person” is hard.  I feel like I have given up rather more than I intended this Lent!

Waiting is not a high status activity, in a way, the longer you wait, the lower your status, and as a society we don’t rate those who “wait on others”, carers, waiters or shop assistants.  Yet we all know how valuable a really good “servant” can be, one who sees others needs and willingly, quietly attends to them.
I have been reading a wonderful book “Waiting on God” by Denis McBride and in it he explores many aspects of waiting.


As I write, we are in Lent, coming up to Holy Week and the story of Christ’s passion.  He reminds us that the root of the word passion, ‘passio’, is also the root for passive (and patient!) and that Jesus moves from being a doer, a healer, a preacher, to allowing things to be done to him.  His passion is a time when he suffers what is done to him – the word “suffer” has also changed its meaning over time.  To suffer was to allow in the King James Version – as in “suffer the little children” but we now use the words suffering and passion in a rather different way. 

The moment when active turns to passive in the gospels is after the last Supper.  There is the terrible agonising still point in the Garden of Gethsemane when Jesus accepts “not my will, but thy will be done”.  He asks the disciples to stay awake while he prays, but they are unable and he struggles on his own.

It is very hard for any of us to “stay awake” to other people’s suffering, and I realise that the change from active to passive that comes in the 3rd age to 4th age transition often has its own painful Gethsemane; the still point or breakpoint where much is given up.

Our duty or gift is to stay awake, not to turn away from the moment of decision or suffering – we cannot alter the outcome but we can stay awake with people to accompany them “com passio” (with compassion).
“Gethsemane is an image of sorrowful waiting, of being present to the prospect of what people will do to you; but it is also a story of resolve to endure, literally to hang in there.  And this is very difficult to do.  Half the world lives in Gethsemane, and the other half is asleep.  It is difficult to stay awake to the suffering of others and to wait with them; we want to get on with life, as if life is somewhere else, at an address safely distant from suffering.”   

From Waiting on God - Denis Mc Bride –
ISBN 0 85231 284 9  Redemporist Publications
While I have been waiting for my leg to heal – hoping to be released from the strictures of 4th age and permitted back to my normal life style – I realise it is what I have learnt in the process, about waiting, that has been the gift. 

I have greatly appreciated the attentiveness shown to me at the moment of crisis and many of those who have been most sensitive are those who have suffered that shift from action to passion themselves.  Their gift of compassion at the time of need has been a vital complement to the capable medical attention I have received. 

Mary Moffett
This article first appeared in The Sign the church magazine of St Cuthbert Colinton

Fireworks









Faith, Hope and love: being in the moment with people who have dementia

I was recently listening to a lecture on biblical interpretation given by Professor John Goldingay, a professor of Old Testament at Fuller Seminary in the US.

At the beginning of the lecture he gave an invitation to his students to join him and his wife for a meal the following week.  His wife, who has now sadly passed away, had multiple sclerosis which was at an advanced stage at the time of the lecture.  He informed the students that his wife probably wouldn’t remember them or be able to communicate, but he urged them nonetheless to speak with her.  He said “she probably won’t remember you afterwards but in that moment she will appreciate you.” 
Hearing that was an epiphany.  Suddenly I realised that I had forgotten something very important: the significance of the present moment.  My lapse of memory echoes the general forgetfulness of society.  We have forgotten what it means to value time.

One of the interesting things to note about capitalist societies is the way in which time has become a commodity. We ‘buy time’ ‘sell time’ ‘waste time’ etc.  We live with time as if it is constantly about to run out!  Time is often a deep source of frustration and angst.  Rather than being friends of time, very often time becomes our enemy!  But Goldingay’s advice to simply be in the moment with his wife reminds us that time is meaningful and valuable.  There is deep value in being with someone in the present moment, even if their recognition of your encounter is fleeting, it is not without meaning.

Within the context of severe dementia recognising the meaningfulness of time and the importance of the present moment is a gift that we easily overlook.  The place where we meet the other person is in the sacred, often fleeting moment of connection between the person with dementia and those who desire to relate to her.
The touch of a hand; the brief locking of eyes, points towards the importance of being there in that moment.  There may be nothing more, but that moment is healing.

Of course, to encounter a person with severe dementia in the immediacy of the present moment requires faith, hope and love.  Faith that the person before us is more than many might assume them to be.  Hope that in the Spirit, your presence can be meaningful; and love that is prepared to give the person before you the benefit of the doubt, even when all of the normal communicational cues point towards emptiness.
Faith inspires hope that enables love.

Faith hope and love as they are recognised and worked out within the sacrament of the present moment means that our encounters are not dictated by the strictures of failing neurology.
Human beings are much more than their memories and anyway, who knows what is going on behind that which appears to be obvious?  Don’t people deserve the benefit of the doubt?

Rev Professor John Swinton,
Professor in Practical Theology and Pastoral Care, University of Aberdeen