Thursday, 30 December 2010

AGM - Debate - Is there a difference between good person-centred care and spiritual care?

The Debate

One of FiOP’s aims is “to promote and deepen understanding of the spiritual care needs of older people wherever they are situated”
We know that many people find spiritual care difficult to define and through a range of events and materials we have tried to de-mystify the issue and to bring it alive for those who provide care - whether physical, emotional, mental or spiritual
In October last year we brought together Professor Mary Marshall, recently retired as the Director of the Dementia Services Development Centre in Stirling and the Rev Malcolm Goldsmith, the founder of FiOP to debate:
Is there a difference between good person-centred care and spiritual care?
The event was superbly moderated by Professor Frank Clark, Convenor of the Scottish Commission for the Regulation of Care and held in the Lifecare Centre in Stockbridge, Edinburgh.
The event was very well attended with representatives from health and social care, academics, churches and individuals.

Prof Frank Clark, Prof Mary Marshall.
Rev. Malcolm Goldsmith.
 
Revd Malcolm Goldsmith.
In his introduction Malcolm Goldsmith clearly stated that it is not person-centred care versus spiritual care but that it is important to consider the crucial areas of overlap. 
There are many definitions of spiritual and his favourite was Mel Kimble’s (2001):
“The spiritual dimension is the energy within that strives for meaning and purpose.  It is the unifying and integrating dimension of being that includes the experience of transcendence .. and the mystery that is at once overwhelming and fascinating, that renders my existence significant and meaningful in the here and now.  It is also a mystery in that it is unmeasurable, unprovable and lacks universal definition.”
But how, Malcolm argued, do we translate this view into everyday terms.  We have to unpack some archetypal images; the stories and myths by which we live, the poetry which communicates beyond rationality; attitudes derived from youth which provide continuity and for some a sense of guidance through life acquired through a spiritual power.
He emphasised  the fourteen spiritual needs of ageing identified by Koenig in 1994 and pointed out that at least 11 of them could be seen as identical with person-centred care and had a particular focus on the ‘need for meaning, purpose and hope’ in coming to terms with our lives.
Our spiritual needs encompass the need to be included; to be comforted; to be occupied, as it gives us a sense of urgency and sometimes a chance to give time and help to others.  For Malcolm this included his need to be quiet, on his own, relating to nature because to be calm he needed to hear birdsong, feel wind and rain and smell soil and leaves.  For others this might be music, art or expression of faith.
For Tom Kitwood all these elements needed to be fulfilled to achieve good person-centred care.  It is vital that we maintain and reinforce identify and Malcolm held the view that faith and worship meets all these needs for some people.  Again some people can transcend poor physical care and poor health but for most of us our body, mind and spirit are profoundly inter-related.
Malcolm gave several examples where the spiritual insights go beyond good person centred care.  One was of a well known hymn ‘O love that will not let me go’ with the verse that says “ I trace the rainbow through the rain and feel the promise is not vain that morn shall tearless be” which takes up the biblical myth of the flood but which provides a powerful image to share with someone in deep distress and opens up a whole treasury of spiritual wisdom and experience.
He concluded by saying that he would always want to be treated in the context of good person-centred care but that he would not wish to be bereft of the stories and myths that had sustained and been of fundamental importance to him.
Professor Mary Marshall
The focus of her presentation was to talk about people with dementia and the importance of getting care right for them.  If this happens then it is possible to ensure that care for everyone is right.
The definitions of 'person centred care' are those developed by Tom Kitwood who was a vicar turned psychology lecturer.  He was enraged by the type of care given to people with dementia in the 1980's and 90's and he gave voice to a whole set of new approaches to the understanding and care of those with dementia.
Professor Marshall made two clear points:
1. Good person centred care is the same as spiritual care – people use different language.
2. There are dangers in suggesting that spiritual care is something different and special.
What Mary meant by good person-centred care was about maintaining and enhancing personhood and quoted Tom Kitwood’s three approaches which she believed should be taken together.  The term personhood, together with its synonyms and parallels can be found in three main types of discourse;
those of transcendence,
those of ethics and
those of social psychology. 
“The functions of the term are different in these three contexts but there is a core of meaning that provides a basic conceptual unity.
Discourses of transcendence make their appeal to a very powerful sense held in almost every cultural setting, that being-in-itself is sacred and that life is to be revered.  Theistic religions capture something of this in their doctrines of divine creation. 
In Eastern traditions of Christianity, for example, there is the idea that each human being is an 'icon of God'.  Some forms of Buddhism, and other non-theistic spiritual paths, believe in an essential, inner nature, always present, always perfect and waiting to be discovered through enlightenment. 
Secular humanism makes no metaphysical assumptions about the essence of our nature, but still often asserts, on the basis of direct experience, that the 'ultimate is personal'.
In the main ethical discourses of western philosophy one primary theme has been the idea that each person has absolute value.  We have an obligation to treat each other with deep respect and never as a means towards some other end.” (Kitwood)
The principle of respect for persons it was argued by Kant and those who followed in his footsteps required no theological justification; it is the only assumption on which our life as social beings makes sense.  The parallels to this kind of thinking is the doctrine of human rights and this has been used theoretically in many different contexts, including that of dementia (Kings Fund 1986).
Mary’s contention was that if spirituality is considered to be additional and essential then it would undermine the confidence of those providing person centred care and that the potential of the language of spirituality being considered as superior could be divisive when the focus should be on meeting the needs of people with dementia effectively.
The speakers raised interesting and varied issues which stimulated many questions from the floor which was pleasing as it demonstrated that there is an active interest in the topic and much to be explored. 
We would like to receive your views on whether you feel there is a difference between spiritual care and good person centred care and how you enable the spiritual care need of older people to be met.
Please email your response or question to: info@fiop.org.uk


Annual General Meeting
At our AGM we said goodbye to one of our Trustees, Lissa Smith, who was thanked for all her support and encouragement as she has been with us from the beginning.
We welcomed two new Trustees – Geoff Lachlan and Helen Thompson – a full introduction will be given to them in our next newsletter. Please contact the office for a copy of the Annual Report and Accounts or see our website www.faithinolderpeople.org.uk




We are sorry to report that Malcolm Goldsmith, for reasons to do with his health, has decided that he should step down from the Board of FiOP.
Malcolm is the founder, inspiration, and driving force behind FiOP which he set up after he was Rector of St Cuthbert’s Colinton (1994 – 2002).  His focus is on celebrating the gifts of age and he combines his academic and practical experience grounded in theology to ensure we see people as individuals and not as symptoms of illness or decline. Malcolm has consistently contributed to the growing understanding of the importance of spiritual care through his books – ‘In a Strange Land’ and ‘Hearing the Voice of People with Dementia’, as well as through his presentations at international conferences and locally based training. 
I have known Malcolm since he arrived in Edinburgh in 1992 and have worked closely with him ever since. The effect he has on us all is a measure of his personality and persuasive charisma.
All those associated with FiOP and its objectives owe Malcolm a debt of gratitude. We join in wishing him the best for the future.
Christopher Davies
Chairperson, Faith in Older People